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Mar 2011: Are treatment preference tools respected? In 2010 Compassion in Dying conducted a systematic review of research evidence which examined: To what extent are the medical treatment wishes laid out in preference tools respected? We wanted to learn more about whether patient choices at the end of life are respected if set out in Advance Decisions (also known as living wills or advance directives). The review found that planned end-of-life care, combined with tools for recording treatment preferences plus buy-in of these tools from healthcare professionals, significantly helps to ensure that patient wishes are respected. Most of the research was from the US and we believe there are valuable lessons we can learn for the UK. Click here to download a summary of the research Click here to download the full review For further details contact Philip Satherley, Research and Policy Officer. Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it Tel: 020 7479 7736 |
Apr 2011: YouGov poll on awareness of end-of-life rightsA poll of 2,000 adults, commissioned by Compassion in Dying, found that 60% of adults would only want comfort care at the end of their lives, although just 3% had made their treatment wishes clear in an Advance Decision. The majority (53%) also wrongly believed that they had the legal right to make treatment decisions on behalf of their loved ones, if their loved ones lost the ability to communicate their wishes. There is often an assumption that healthcare professionals must do all they can to keep people alive. However, when someone is dying, it is often in their best interest to focus on using palliative treatments to ensure they are comfortable rather than to continue more aggressive, life- sustaining treatment. This poll shows that a majority of the public shares this view. However, few people have made those preferences clear in an Advance Decision. People often believe that decisions about their treatment can be made on their behalf by family or friends, while the reality is that in the absence of an Advance Decision or a Lasting Power of Attorney, these decisions are often made by healthcare professionals who may or may not be able to consult with family members. Survey results: If you were dying with no prospect of recovery - in the last days and weeks of life, which one of the following would you prefer?
If an adult loved one/ your next of kin lost the ability to communicate their wishes, do you think you would have the legal right to make medical treatment decisions on their behalf?
Do you currently have an Advance Decision document?
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Research
