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Supporting your choices at the end of life

      Research 

Mar 2011: Are treatment preference tools respected?

In 2010 Compassion in Dying conducted a systematic review of research evidence which examined: To what extent are the medical treatment wishes laid out in preference tools respected?

We wanted to learn more about whether patient choices at the end of life are respected if set out in Advance Decisions (also known as living wills or advance directives).

The review found that planned end-of-life care, combined with tools for recording treatment preferences plus buy-in of these tools from healthcare professionals, significantly helps to ensure that patient wishes are respected.  Most of the research was from the US and we believe there are valuable lessons we can learn for the UK.

Click here to download a summary of the research

Click here to download the full review

For further details contact Philip Satherley, Research and Policy Officer.

Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Tel: 020 7479 7736

 
Apr 2011: YouGov poll on awareness of end-of-life rights

A poll of 2,000 adults, commissioned by Compassion in Dying, found that 60% of adults would only want comfort care at the end of their lives, although just 3% had made their treatment wishes clear in an Advance Decision.

The majority (53%) also wrongly believed that they had the legal right to make treatment decisions on behalf of their loved ones, if their loved ones lost the ability to communicate their wishes.

There is often an assumption that healthcare professionals must do all they can to keep people alive. However, when someone is dying, it is often in their best interest to focus on using palliative treatments to ensure they are comfortable rather than to continue more aggressive, life- sustaining treatment. This poll shows that a majority of the public shares this view.

However, few people have made those preferences clear in an Advance Decision. People often believe that decisions about their treatment can be made on their behalf by family or friends, while the reality is that in the absence of an Advance Decision or a Lasting Power of Attorney, these decisions are often made by healthcare professionals who may or may not be able to consult with family members.

Survey results:

If you were dying with no prospect of recovery - in the last days and weeks of life, which one of the following would you prefer?

  •     Comfort care only – 60%
  •     Limited additional intervention – 14%
  •     Full treatment – 8%
  •     Don’t know – 14%
  •     Prefer not to say – 5%

If an adult loved one/ your next of kin lost the ability to communicate their wishes, do you think you would have the legal right to make medical treatment decisions on their behalf?

  •     Yes, I do – 53%
  •     No, I don’t – 24%
  •     Don’t know – 23%

Do you currently have an Advance Decision document?

  •     Yes, I do – 3%
  •     No, I don’t –  93%
  •     Don’t know – 4%

 

Click here for the full poll results

 
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News

21 Feb 2012
Blog An article in today’s Daily Mail (Give up chemo? No way. I owe it to my children to fight for every day of life), features three terminally ill people discussing their end-of-life treatment
31 Jan 2012
Compassion in Dying welcomes Council of Europe resolution Compassion in Dying, the leading provider of free Advance Decisions in the UK, has welcomed a new Council of Europe resolution entitled Protecting human rights and